Monday, 4 September 2017

A surprising new way to eat!


A New Trial Protocol: no more trials!
At 18  months, our doctor recommended that we "just feed Matthew everything now" and not to trial new foods per se (obviously we continue to avoid our known triggers, rice and beef, and oats as well). After living with trialing so precisely for so long, it took me several weeks to even process that information and figure out HOW to just feed him like non-FPIES families do every day. It sounds a bit strange, that I didn't know how to feed him without trialing! After about a month of worrying, I decided that it was best to just take the plunge. So far, he is doing great! No reactions! (We are still dealing with eczema.) It was quite emotional for me to take him to a restaurant and let him eat! It felt so unusually "normal" to just tell the server "no rice, beef or oats", just like a regular kid (with regular allergies!) Of course, we did get the "Rice? Whose allergic to rice?" line, and also the "whoa, weird allergies!" comments but I took it as a "teachable moment" and educated them about FPIES.

Re-trialing
Our allergist has recommended that we delay re-trialing until he is 3. The guidelines say to wait at least 12-18 months after the last ingestion, however, she is reading more on FPIES now ("to keep up with me", she says!) and feels it best to err on the side of caution and delay longer. I was pleasantly surprised!


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